This web content tells the story of a family grappling with a devastating genetic mutation that causes frontotemporal dementia (FTD), a progressive brain disease. The author emphasizes the impact of the disease on the family members, particularly on Christy and Mary, who display symptoms of FTD. The author also highlights the struggle and uncertainty faced by those who may carry the mutation, including Barb, who must grapple with the decision to be tested. The content underscores the rarity of FTD, the lack of a cure, and the profound implications of living with the disease. The author also explores themes of loss, sacrifice, and the desire for normalcy.
https://www.nytimes.com/2023/07/20/magazine/family-genetics-frontotemporal-dementia.html